Meet Amazing with Medical Mama and Podcast Hostess of When Autumn Comes
Even if you aren’t a rare disease medical mama, YOU NEED TO LISTEN. In this episode, whoa, wow, what?? Susan is the podcast hostess of When Autumn Comes. She is also the medical mama of 2 children with the extremely rare form of mitochondrial disease. In our discussion today, she gives voice to the struggles and the joy of raising children with a life expectancy of 2-5 years. I am so honored to talk with her.
Even if you aren’t a rare disease medical mama, YOU NEED TO LISTEN. In this episode, whoa, wow, what?? Susan is the podcast hostess of When Autumn Comes. She is also the medical mama of 2 children with the extremely rare form of mitochondrial disease. In our discussion today, she gives voice to the struggles and the joy of raising children with a life expectancy of 2-5 years. I am so honored to talk with her. We get into issues like:
· How long does it take to get to a place of “okay-ness” with everything you hear and have to deal with after a diagnosis?
· Pumping, breast feeding, and the things we can “somewhat” control when there is so much we can’t control.
· How do we deal with the things that separate our children from the perceived “typical/normal” child?
· How do we live!!!??? How do we all continue to live with children that are in the process of closing this chapter?
· What would you really want for your child and your life as a family? What type of your journey would you change?
We cover this and so much more!
Enjoy!
Susan G
Podcast Hostess
Her friends call her Suz. Her two favorite humans non-verbally call her Mama. Suz is married to Michael and they have two special needs, medical, Mitochondrial Disease kiddos: Lorelei and Benji. Their house is full of beautiful chaos, buckets of hope, a lot of puke from the kids and excessive fur balls from their four pets. They all live in Suffolk, Virginia, but would relocate to Key West in a moment’s notice if there was a children’s hospital!
Susan graduated from James Madison University many, many moons ago and is now working as the marketing director of a local pediatric therapy company. She has been a blogger, writer and creator her entire life.
In the rare minutes when Susan is not being a hospital mom, marketing director, writer, chaos coordinator, podcaster or multi-tasking ninja… you can find Suz anywhere there is water and a view. Preferably with a glass of wine, good music and a hammock… Ha! A girl can dream right?!