Community Zoom: December 14th - 5pm PT
July 19, 2022

Meet Amazing with Medical Mama and Podcast Hostess of When Autumn Comes

Meet Amazing with Medical Mama and Podcast Hostess of When Autumn Comes

Even if you aren’t a rare disease medical mama, YOU NEED TO LISTEN.  In this episode, whoa, wow, what??  Susan is the podcast hostess of When Autumn Comes.  She is also the medical mama of 2 children with the extremely rare form of mitochondrial disease.  In our discussion today, she gives voice to the struggles and the joy of raising children with a life expectancy of 2-5 years.  I am so honored to talk with her.


Even if you aren’t a rare disease medical mama, YOU NEED TO LISTEN.  In this episode, whoa, wow, what??  Susan is the podcast hostess of When Autumn Comes.  She is also the medical mama of 2 children with the extremely rare form of mitochondrial disease.  In our discussion today, she gives voice to the struggles and the joy of raising children with a life expectancy of 2-5 years.  I am so honored to talk with her.  We get into issues like:

·        How long does it take to get to a place of “okay-ness” with everything you hear and have to deal with after a diagnosis?

·        Pumping, breast feeding, and the things we can “somewhat” control when there is so much we can’t control.

·        How do we deal with the things that separate our children from the perceived “typical/normal” child?

·        How do we live!!!???  How do we all continue to live with children that are in the process of closing this chapter?

·        What would you really want for your child and your life as a family? What type of your journey would you change?

We cover this and so much more! 

Enjoy!